"Everyone has the right to a standard of living adequate for the health and well-being of himself and of his family, including . . . medical care . . ."
Article 25, Universal Declaration of Human Rights adopted by the UN on December 10, 1948
Maine needs universal health care for all
Editor's note: This recent Bangor Daily News story provides yet another example why we need a simple, effective and affordable health care system that covers everyone in Maine. Sandy Butler and Luisa S. Deprez, two University of Maine professors, document the plight of a Richmond woman with a kidney transplant. No one should live in fear because they cannot pay for their needed medications.
‘A lot of fears’: A Richmond woman’s health problems and 3 months without coverage
By Sandy Butler and Luisa Deprez
Special to the BDN
Oct. 24, 2014
Sheila Scott has lived in fear of kidney failure for 20 years. Then, for the past three months, she lived with the fear that goes along with not having health insurance. She’s still afraid her health coverage won’t last.
Scott, 52, of Richmond was diagnosed with kidney disease at age 32 and had a kidney transplant eight years later. Ever since, she has depended on medications she’ll have to take for the rest of her life to ensure her body doesn’t reject the transplanted kidney.
“One of my biggest fears in having a transplant was not being able to pay for the meds,” Scott said. “And everyone was like, ‘Oh, don’t worry.’ You know, ‘You don’t have to worry.’ And here I am worrying.”
That’s because in August, Scott joined the ranks of thousands of Maine residents who have lost their health coverage through MaineCare over the past year as a result of state budget cuts. MaineCare is Maine’s version of the federal Medicaid program, which offers health coverage for people with low incomes and disabilities.
Scott recently received notice that her coverage would be reinstated, though the notice didn’t explain why. But for three months, she joined nearly 35,000 Maine people, the majority of whom work, who lost coverage as a result of the budget cuts and Gov. Paul LePage’s vetoes of legislation that would have allowed Maine to accept federal funds set aside through the Affordable Care Act to close the “coverage gap” for people with low income. Those people are not eligible for subsidies to help them afford private insurance. Not accepting the federal funds meant many low-income adults — working people like Sheila — were cut from MaineCare and lost their health care coverage.
The people who lost coverage at the start of the year fit into two categories: parents who earned between 100 and 133 percent of the federal poverty level and adults without dependent children. None of them earned more than $11,670 annually for a household of one. Scott likely qualified for Medicaid as part of this latter category.
It’s unknown to Scott and those who advocated for her continued MaineCare coverage why the Department of Health and Human Services cut off her coverage in August, rather than in January when other childless adults lost their coverage. It’s similarly unclear why she received notice that her coverage would be reinstated.
A DHHS spokeswoman said the department can’t comment publicly on specific cases. It’s possible, however, that the department has determined Scott qualifies for coverage due to disability.
“There are a variety of reasons why an individual could lose coverage and then regain it,” DHHS spokeswoman Sarah Grant wrote in an email. “For example, if the department requests information and the client does not provide the information, their case would close. If the client subsequently provides the information, the case could then be reopened.”
Scott first qualified for MaineCare more than 20 years ago as a low-income parent with dependent children. She kept her coverage after she became disabled due to her kidney disease diagnosis. After the transplant 12 years ago, Scott returned to work and stopped collecting the Supplemental Security Income she had been receiving as a result of her disability.
Though she stopped collecting her disability-related income, she continued to qualify for MaineCare until she lost it in August. The loss of health insurance coverage presented life-threatening consequences for Scott. How would she afford the medications she needs for her kidney?
Without MaineCare, she couldn’t afford them. She was able to receive some assistance from the Kidney Foundation, but the foundation paid for a substitute medication. “I just had to swap medications because I couldn’t find anyone to cover [my previous prescription].”
She is not certain yet whether the new medication is working properly because she has not been able to have the needed blood test to check that out.
That would involve seeing a doctor, and Scott had to stop going to the kidney specialist she has seen for years because she couldn’t afford those services without MaineCare. “I have a lot of fears, because I don’t want to go back on a kidney machine,” she said. “I don’t know how I did it as long as I did. My kids were young, and I just needed to.”
Scott’s two sons are grown now and have children of their own. She helps take care of her grandchildren and works 20 hours a week as a cook at a market in Richmond. She makes $8.75 per hour. She lives alone in a small, one-bedroom, rental house and struggles to make ends meet.
Maintaining her health is the priority in Sheila’s life, and losing MaineCare scared her — “especially after years of taking care of myself,” she said. “I don’t drink. I don’t smoke. I don’t do drugs. I’ve taken care of myself to keep this kidney.”
Without coverage, Scott found herself neglecting other health care needs. “My knees have been swollen for two weeks now,” she said recently before she found out her coverage would be reinstated. “I see my primary care doctor on Thursday, but I couldn’t afford to go to two [other] doctors and I don’t even know if I can get x-rays or anything. You know, it is just the wrong timing. My condition is never going to get better, because of what I have.”
Some days, Scott had to miss work as her health has deteriorated. She knows this means a decrease in much-needed income but says, “Since my leg’s been bothering me, I had to call out because it hurt too much to be on it. I had worked Friday and Saturday, so I called out Sunday.” When her boss asked her if she needed to stay home the following week, she said no, despite her ongoing pain. “I can’t afford to because I have meds to pay for next week, and there is no way to pay for them.”
Scott also suffers from degenerative disc disease, type II diabetes, severe arthritis and cataracts. She has begun to look into getting disability benefits again, but for now she works at her physically demanding job.
Without MaineCare, Scott lived in fear of what would happen if she couldn’t afford the medications and doctors’ appointments she needs to maintain her health. “Before you do a transplant, make sure you have good insurance, because it is not easy,” she warns others with kidney disease. “Make sure you are going to be able to keep it, because you have to be on these meds for the rest of your life. You can’t just stop them.”
Scott still worries her MaineCare, while reinstated, won’t last.
If Maine had accepted the federal funds to expand MaineCare this past year, Scott would not have gone without coverage. Maine can still accept the federal funds to close the “coverage gap” so Scott and nearly 70,000 Maine people can gain coverage.
Scott said she hopes a new Legislature and governor will agree to accepting the federal funds following the Nov. 4 elections so she and many others in Maine can rest a little easier knowing they can access the health care they need to remain healthy, continue working and taking care of the children and grandchildren they love.
Sandy Butler is professor of social work and graduate program coordinator in the School of Social Work at the University of Maine. Luisa S. Deprez is professor and department chair of sociology and women and gender studies at the University of Southern Maine. They are members of the Maine Regional Network, part of the Scholars Strategy Network, which brings together scholars across the country to address public challenges and their policy implications.
The intent of the 2010 Affordable Care Act (ACA) was to extend health care coverage to those earning less than 138 percent of the federal poverty level ($27,310 for a family of three).
- Nearly 70,000 low-income Mainers would be eligible for health care coverage if Maine accepted federal funds set aside to expand Medicaid. Many of these 70,000 are not eligible for federal subsidies as they are below the federal poverty level. They fall in the so-called “coverage gap.”
- The Legislature passed bipartisan legislation to accept federal funding to close Maine’s “coverage gap” and expand Medicaid for people who can’t afford health care coverage in the new marketplace. Gov. Paul LePage vetoed various versions of this legislation five times.
- New Census data show the number of uninsured Mainers increased by 12,000 in 2013 and that Maine’s uninsured rate rose to 11.2 percent from 10.2 percent in 2012. This is in sharp contrast with national trends where the uninsured rate fell by 0.2 percent during that same time.
A July 2014 Urban Institute report found that overall, the ACA has helped states to experience a significant drop in uninsured rates.
Studies also show that uninsured people generally receive much less care for acute and chronic health conditions and fewer preventive services and screenings, such as mammograms, pap smears, or prostate screening and that people without coverage often wait to seek health care until they are in need of more costly care.
The Maine Center for Economic Policy estimates that Maine’s failure to accept federal money for Medicaid expansion is costing Maine’s economy half a billion dollars each year, which could support over 4,000 jobs, ensure Mainers get the care they need from their family doctor, and save hospitals millions of dollars for care provided to the uninsured.
Accepting federal funds to close the coverage gap in Maine makes good sense. Adults with insurance coverage are healthier and at lower risk for premature death than the uninsured. Recent studies of states that have accepted the federal funds show the amount of charity care provided by hospitals has substantially decreased in states that have expanded Medicaid while revenues have increased.
What Can Maine Doctors Do?
Return medicine to its healing roots — help educate and advocate for universal, single-payer health care that covers every Maine resident
- Join Maine AllCare mailing list, and volunteer to help, including supporting financially
- Join PNHP — www.pnhp.org
- Visit our websites regularly — www.maineallcare.org & www.philcaper.net for more information
- Organize and make your voices heard through the Maine Medical Association
- Doctors have lost influence during the past 30 years or so, but we are far from powerless – they don’t have much of a business without us!
- Doctors are still influential – make your views known
- Write op-eds and letters to the Editor of your local paper
- Testify in person and in writing before the relevant legislative committees when legislation affecting health care is being considered. MAC can help organize these efforts
- Organize speaking events directed at professions and lay audiences for Maine AllCare speakers
- Grand rounds
- Local and specialty medical societies
- Community forums, church groups, Rotary Clubs, Lions Clubs, Chambers of Commerce
If you have ideas about how else we might advance the cause of universal health care here in Maine, please write to us at firstname.lastname@example.org and and put "Idea" in the Subject line. Thank you.
Maine Health Care FACT
Maine’s uninsured population rose from 135,000 individuals in 2012 to 147,000 in 2013, an increase of 12,000 people, according to the U.S. Census Bureau’s American Community Survey. (story)
Small ¢ontribution$ toward a big idea — Universal Health Care in Maine
We at Maine AllCare invite you to join our Universal Dollar Fundraising Campaign. We are asking for small, recurring donations. Monthly contributions of two, five or ten dollars from many people will create a modest, but stable and reliable funding source to help pay for printing the brochures, handouts and newsletters we use at community meetings around the state. Other costs add up fast, such as theaters rentals for showing the award-winning documentary, The HEALTHCARE Movie.
Please consider making a recurring donation of any amount to support our education and advocacy for universal health care in Maine. Anyone who makes a recurring donation will receive the above “button” as a “Thank You” until our supply runs out. (We have hundreds). We are a nonprofit, nonpartisan organization. Your contributions are tax deductible. It’s easy. Simply click on the blue Donate button on the left and fill in the brief form; and don’t forget to select the “Donation frequency.” One more thing: The more donor/supporters we have, not in dollars but in numbers, the more our combined voices are heard and the closer we get toward a majority who believe that every Mainer should have affordable, quality health care! Thank you.
How ACA fuels corporatization of American health care
By Dr. Philip Caper
Special to the BDN
November 20, 2014
A new Harvard study has found that Americans’ trust in the medical profession has dropped dramatically in recent years and lags behind that in many other wealthy countries. At the same time, doctors are becoming increasingly unhappy with our profession. In his new memoir, “ Doctored,” Dr. Sandeep Jauhar eloquently explains why: More and more doctors are coming to view our profession as just another job.
We now have a situation where patients are losing confidence in their doctors, while doctors are losing confidence in our ability to do the right thing for our patients. We have a health care system becoming more hostile to doctors and patients and more friendly to health care corporations.
These trends are collateral damage caused by another trend: our increasingly corporatized, commodified and commercialized U.S. health care “industry” that is being put into hyper drive by the Affordable Care Act. The ACA is accelerating an ongoing wave of hospital consolidations and acquisition of doctors’ practices by large corporations, such as Eastern Maine Healthcare Systems and MaineHealth.
As we continue down this road, doctors see our clinical autonomy disappearing as more and more of us become corporate employees subject to pressure to meet corporate financial goals that often differ from what is best for our patients. Patients sense that pressure as they are rushed through exams and are subject to more tests and procedures, some of them of questionable clinical value. They can almost hear the cash registers ringing as they move through their doctors’ offices, as more wealth is transferred from patients to those selling health care goods and services.
Why is American medicine, once the crown jewel of American professionalism and a proud and respected calling, becoming just another commercial enterprise? In his 2010 book “ Hijacked,” Dr. John Geyman, chairman emeritus of the department of family practice at the University of Washington, explains how during the year-long Congressional debate leading up to enactment of the ACA, the interests of the public, including doctors and patients, were subverted to those of large health care corporations.
The highjacking of health care reform is paying off handsomely. Robert Pear of the New York Times recently described how the federal government and the commercial health insurance industry have morphed into one big fan club for the ACA. He quotes the libertarian Cato Institute’s Michael Cannon explaining that since the ACA’s enactment, “Insurers and the government have developed a symbiotic relationship, nurtured by tens of billions of dollars that flow from the federal Treasury to insurers each year.”
Pear goes on to report that, “Since Mr. Obama signed the law, share prices for four of the major insurance companies — Aetna, Cigna, Humana and UnitedHealth — have more than doubled, while the Standard & Poor’s 500-stock index has increased about 70 percent.”
Pharmaceutical companies also have done very well. The ACA contains no authority for the government to negotiate pharmaceutical prices but continues the federal prohibition on the importation by U.S. residents of lower priced prescription drugs from many foreign countries.
This situation won’t change anytime soon. Congress is gridlocked. What is widely recognized as a drafting error in the ACA — which, in saner times, could have been fixed quickly without attracting much attention — is now headed to the Supreme Court.
Of course, health care is just one of many examples in which the welfare of corporations has been put ahead of the interests of the public, but it may be the poster child. Health care is now more than a sixth of our economy, and human lives and dollars are at stake.
Corporate stranglehold of our public policy traces back to the increasingly corrupt way our political campaigns are financed. The recent midterm elections were a stark reminder of that, setting record levels for corporate spending, even on local races, and saturating voters with negative, intrusive and often obnoxious messages.
What’s at stake is the future of health care and many other issues that will determine what kind of a country our children will live in. That future depends on how active and informed the public is willing to become in electing public officials who place the welfare of their constituents ahead of the wishes of their corporate contributors.
The results of the recent elections are not encouraging. But what’s becoming clearer is that our struggle is not between Democrats and Republicans, liberals and conservatives, or occupiers and tea partiers. It is between real American people and corporations.
I, for one, intend to continue pointing that out. That’s where our attention should be focused.
Physician Philip Caper of Brooklin is a founding board member of Maine AllCare, a nonpartisan, nonprofit group committed to making health care in Maine universal, accessible and affordable for all. He can be reached at email@example.com.